Genetic Alliance
Programs▾
Disease InfoSearchIRBRegistry BootcampPublicationsBioBankRegistryWikiAdvocacyExpecting HealthiHope Genetic Health
Policy
Events▾
WebinarsWebinar Archives
About▾
News
Home Page
Donate
Donate
  • Programs
    Programs OverviewDisease InfoSearchIRBRegistry BootcampPublicationsBioBankRegistryWikiAdvocacy ↗Expecting Health ↗iHope Genetic Health ↗
  • Policy
  • Events
    Events OverviewWebinarsWebinar Archives
  • About
    About OverviewNews
  • Home Page
Donate

Genetic Alliance Network Announcements

Periodically, Genetic Alliance will alert you to important action items, announcements, and deadlines, including Genetic Alliance-specific material as well as information from the genetics, health, and advocacy communities. Some weeks there will be no emails; other weeks one or more might be sent to the list.


Community Forum Discussion

Being a part of the Genetic Alliance network gives you access to valuable online meeting spaces that provide an opportunity to discuss as a virtual community.

ga-logo-white
genetic-alliance


Genetic Alliance is registered as a 501©3 nonprofit organization. Contributions to Genetic Alliance are tax-deductible to the extent permitted by law. Our tax identification number is 52-1571905.



Copyright 1995 - 2024, Genetic Alliance

Jobs and Internships
Archives and History
Annual Reports
Press Releases
Contact Us
Privacy Policy
Health Disclaimer

twitter-white facebook-white linkedin-white youtube-white


candid-seal-platinum-2023



Except where otherwise noted, content on this site is licensed under a Creative Commons Attribution 3.0 License.

Except where otherwise noted, content on this site is licensed under a Creative Commons Attribution 3.0 License.

candid-seal-platinum-2023

Our Goal


To transform health systems to respond to what people need most.

Spotlight: iHope is a global program of Genetic Alliance that provides clinical genomic sequencing and follow-up support to children with suspected genetic conditions in low to middle income countries. We are grateful to our sponsors, labs, and clinical sites.

iHope logo

EIN press release 3000

New sites

Our Programs

Home_page_BioBank

BioBank

The Genetic Alliance BioBank provides the infrastructure needed to collect, archive, and distribute all types of biospecimens. Our model allows us to offer exceptional and cost-effective biorepository services to nonprofit communities and organizations.
Home_page_IRB

IRB

A founding member of SMART IRB, a platform that provides resources for multisite research and helps institutions adopt the NIH Single IRB review policy, Genetic Alliance's Institutional Review Board offers advantages such as lowers costs, fast turnaround times, and user-friendly templates for IRB approval.
Home_page_Registry

Registry

An award-winning registry platform allows communities to quickly and efficiently build registries and design studies. Powered by Luna technology, the platform operates in compliance with international and domestic privacy regulations to empower individuals, families, and communities to contribute their health data for participant-driven research.
Home_page_Bootcamp

Registry Bootcamp

RegistryBootcamp.org offers advocates, advocacy organizations, and other community groups the information and strategies needed to launch and manage an impactful registry. Whether you are looking for an introduction to registries, a deep dive into a specific sub-topic, or a practical guide, this site has something for you.

Support for Communities

Genetic Alliance helps organizations and communities cultivate a supportive environment and do the research their community needs.

services

Support for Your Staff and Community

Take time to cultivate, culture, support, and growth.
services-8

IRB Protocol Writing Support

Create effective research protocols for your next IRB submission.
services-6

Biobanking Support

Build a successful biobank for your community.

Our Tools

DIS

Disease InfoSearch

wikiadvocacy-program

WikiAdvocacy