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Our Goal

To transform health systems to respond to what people need most.

Spotlight: iHope is a global program of Genetic Alliance that provides clinical genomic sequencing and follow-up support to children with suspected genetic conditions in low to middle income countries. We are grateful to our sponsors, labs, and clinical sites.

Our Programs

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BioBank

The Genetic Alliance BioBank provides the infrastructure needed to collect, archive, and distribute all types of biospecimens. Our model allows us to offer exceptional and cost-effective biorepository services to nonprofit communities and organizations.

IRB

A founding member of SMART IRB, a platform that provides resources for multisite research and helps institutions adopt the NIH Single IRB review policy, Genetic Alliance's Institutional Review Board offers advantages such as lowers costs, fast turnaround times, and user-friendly templates for IRB approval.

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Registry

An award-winning registry platform allows communities to quickly and efficiently build registries and design studies. Powered by Luna technology, the platform operates in compliance with international and domestic privacy regulations to empower individuals, families, and communities to contribute their health data for participant-driven research.

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Registry Bootcamp

RegistryBootcamp.org offers advocates, advocacy organizations, and other community groups the information and strategies needed to launch and manage an impactful registry. Whether you are looking for an introduction to registries, a deep dive into a specific sub-topic, or a practical guide, this site has something for you.

Support for Communities

Genetic Alliance helps organizations and communities cultivate a supportive environment and do the research their community needs.

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Support for Your Staff and Community

Take time to cultivate, culture, support, and growth.

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IRB Protocol Writing Support

Create effective research protocols for your next IRB submission.

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Biobanking Support

Build a successful biobank for your community.

Our Tools

DIS

Disease InfoSearch

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WikiAdvocacy