Press Releases
March 25, 2022 - Genetic Alliance Selected for Amazon Web Services (AWS) Health Equity Program
February 3, 2022 - AGSAA, Biogen, LunaPBC, and Genetic Alliance Launch Community-Led Discovery Program for Aicardi-Goutières Syndrome
December 14, 2021 - Takeda, National MPS Society, Luna, and Genetic Alliance Launch Community-Led Discovery Program for Hunter Syndrome
November 16, 2021 - Illumina and Genetic Alliance Launch $120 Million Global Initiative to Increase Equity and Improve Outcomes for Families Impacted by Genetic Disease
May 26, 2020 - KCNT1 Epilepsy Foundation, LunaPBC, and Genetic Alliance to Launch Patient-Led Discovery Program
January 22, 2019 - Genetic Alliance and LunaPBC Partner to Support Personal Health and Accelerate Medical Breakthroughs
January 20, 2019 - Genetic Alliance CEO is Honored with the Luminary Award from the 2019 World Precision Medicine Congress
September 24, 2018 - Genetic Alliance’s Expecting Health Team Awarded Multi-Million Dollar Newborn Screening Family Education Program
June 20, 2018 - Statement from Expecting Health on Inhumane Family Seperations
June 15, 2017 - Genetic Alliance CEO Details Shortcomings of Nation’s Medical Research Infrastructure in Newly-Released TEDMED Talk
September 16, 2016 - Genetic Alliance Supports New NIH Policy on Clinical Trials
March 14, 2016 - Baby’s First Test Funds Innovative Newborn Screening Education Program for Hospital NICU
February 25, 2016 - Genetic Alliance and PCORnet to Participate in Precision Medicine Summit with President Obama
January 7, 2016 - New Dietary Guidelines for Americans Released, Including Recommendations for Pregnant and Breastfeeding Women
September 28, 2015 - Genetic Alliance Launches National Survey on Genetic Services
July 27, 2015 - CENA Approved for $1.2 Million in Second Phase of Development of PCORnet, a New National Clinical Research Network
July 22, 2015 - Perinatal Nutrition Working Group Finds New Home in Expecting Health
July 8, 2015 - Genetic Alliance’s PEER Registry Recognized at White House Precision Medicine Initiative Event
April 28, 2015 - Baby's First Test Upgrades English and Spanish Newborn Screening Web Tools ( En Español