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Genetic Alliance Network Announcements

Periodically, Genetic Alliance will alert you to important action items, announcements, and deadlines, including Genetic Alliance-specific material as well as information from the genetics, health, and advocacy communities. Some weeks there will be no emails; other weeks one or more might be sent to the list.

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Being a part of the Genetic Alliance network gives you access to valuable online meeting spaces that provide an opportunity to discuss as a virtual community.

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Archives and History

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Press Releases

March 25, 2022 - Genetic Alliance Selected for Amazon Web Services (AWS) Health Equity Program

February 3, 2022 - AGSAA, Biogen, LunaPBC, and Genetic Alliance Launch Community-Led Discovery Program for Aicardi-Goutières Syndrome

December 14, 2021 - Takeda, National MPS Society, Luna, and Genetic Alliance Launch Community-Led Discovery Program for Hunter Syndrome

November 16, 2021 - Illumina and Genetic Alliance Launch $120 Million Global Initiative to Increase Equity and Improve Outcomes for Families Impacted by Genetic Disease

May 26, 2020 - KCNT1 Epilepsy Foundation, LunaPBC, and Genetic Alliance to Launch Patient-Led Discovery Program

January 22, 2019 - Genetic Alliance and LunaPBC Partner to Support Personal Health and Accelerate Medical Breakthroughs

January 20, 2019 - Genetic Alliance CEO is Honored with the Luminary Award from the 2019 World Precision Medicine Congress

September 24, 2018 - Genetic Alliance’s Expecting Health Team Awarded Multi-Million Dollar Newborn Screening Family Education Program

June 20, 2018 - Statement from Expecting Health on Inhumane Family Seperations

June 15, 2017 - Genetic Alliance CEO Details Shortcomings of Nation’s Medical Research Infrastructure in Newly-Released TEDMED Talk

September 16, 2016 - Genetic Alliance Supports New NIH Policy on Clinical Trials

March 14, 2016 - Baby’s First Test Funds Innovative Newborn Screening Education Program for Hospital NICU

February 25, 2016 - Genetic Alliance and PCORnet to Participate in Precision Medicine Summit with President Obama

January 7, 2016 - New Dietary Guidelines for Americans Released, Including Recommendations for Pregnant and Breastfeeding Women

September 28, 2015 - Genetic Alliance Launches National Survey on Genetic Services

July 27, 2015 - CENA Approved for $1.2 Million in Second Phase of Development of PCORnet, a New National Clinical Research Network

July 22, 2015 - Perinatal Nutrition Working Group Finds New Home in Expecting Health

July 8, 2015 - Genetic Alliance’s PEER Registry Recognized at White House Precision Medicine Initiative Event

June 23, 2015 - Claritas Genomics and Genetic Alliance Announce Partnership to Enable Patients and Families in Clinical Care to Participate in Pediatric Rare Disease Research

April 28, 2015 - Baby's First Test Upgrades English and Spanish Newborn Screening Web Tools ( En Español