Disease InfoSearch

Disease InfoSearch is a consumer-facing directory of more than 10,000 diseases, with up-to-date information about current opportunities for research and support curated by advocacy organizations.

Condition pages aggregates links to quality disease information across the Internet and pairs them with up-to-date, curated information on support groups and resources. Viewers can find information ranging from scientific articles to active clinical trials and everything in-between. Disease InfoSearch acts as an all-in-one resource for newly diagnosed individuals and their families, as well as the medical community.

This resource aggregates information from partner sites around the internet, allowing you to access all of the information, resources, and support you might need. Disease InfoSearch also provides opportunities for you to connect with advocacy organizations, data registries, research opportunities, and clinical trials, and is a great place to learn more information about a specific disease or condition.

Simply type in the name of a condition above and Disease InfoSearch will locate quality information from a database of more than 13,000 conditions and thousands of support groups and foundations.

Disease Advocacy Organizations

From Disease InfoSearch, you can create a listing for your organization to support efforts in improving education, research, and support. Visit the site to review information about the disease or condition you support and sign up to list your organization.

GaugeRx

GaugeRx is a useful tool for expediting the drug development decision-making process for advocacy organizations, researchers, and pharmaceutical companies. Disease InfoSearch provides the data informing the GaugeRx algorithm, which generates an actionable output and recommended next steps for drug development for multiple stakeholders. Disease InfoSearch will also show you what resources are already available for a particular disease or condition, which may help to inform research decisions.