Webinar Archives
Genetic Alliance has and will continue to host a number of featured webinars on a wide array of topics. For the list of upcoming webinars, please visit our Webinars page .
Dancing with Data Webinar Series
Featuring experts in data science, data privacy, stakeholder engagement in research, and more.
Lessons From the Field Webinar Series
Advocacy leaders and other experts share their success, challenges, and opportunities.
Clinical Trials Done Differently
May 1, 2020
There are many reasons why clinical trials conducted in the homes of participants would be preferable. These include reducing the burden on participants, being able to capture assessments when they are not in a strange, and potentially stressful environment, making trials accessible to more people, including those who cannot travel easily for health status or other reasons.
Christine McSherry, founder of neuromuscular non-profit, Jett Foundation since 2001, current CEO and co-founder of Casimir. Casimir has been doing remote video capture on functional assessments since 2016. Christine and co-founder Mindy Leffler have a unique approach and understand the confounds that exist in situ trials.
Craig Lipset is founder of Clinical Innovation Partners, supporting organizations seeking to innovate in the conduct of clinical trials and medicine development. He previously served as Head of Clinical Innovation at Pfizer where he introduced the pharma industry's first fully "at-home" clinical trial for a drug under FDA IND. Craig serves on the Board of Directors for Foundation for Sarcoidosis Research and MedStar Health Research Institute as well as TrialScout.
Donna Appell is the founder and Executive Director of the Hermansky-Pudlak Syndrome Network, a small non-profit whose members struggle with legal blindness, a bleeding disorder, colitis and fatal lung disease. We were the primary recruiters for two drug trials which gave us lessons learned about clinical trials. Donna is a registered nurse and has an adult daughter with HPS.
Download Slides: Webinar Recording
2020 Webinar Series: Registry Bootcamp
2018 Webinars
2016-2017 Webinars
2014-2015 Webinars
2014 Webinar Series: Managing the Mass of Measures: Real People's Real Data Made Useful
2013 Advocacy Webinars
2013 Baby's First Test Webinar Series
2013 What about Privacy and Progress in Whole Genome Sequencing? Webinar Series
2013 Registries For All Webinar Series
2012-2011 Webinars
2010 Webinars
2009 Webinars