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Genetic Alliance Network Announcements

Periodically, Genetic Alliance will alert you to important action items, announcements, and deadlines, including Genetic Alliance-specific material as well as information from the genetics, health, and advocacy communities. Some weeks there will be no emails; other weeks one or more might be sent to the list.


Community Forum Discussion

Being a part of the Genetic Alliance network gives you access to valuable online meeting spaces that provide an opportunity to discuss as a virtual community.

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Except where otherwise noted, content on this site is licensed under a Creative Commons Attribution 3.0 License.

Except where otherwise noted, content on this site is licensed under a Creative Commons Attribution 3.0 License.

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About Registry Bootcamp

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Start learning with RegistryBootcamp.org

Start learning with RegistryBootcamp.org

RegistryBootcamp.org is a straightforward, online guide for establishing and managing research registries. The resources GA provides through RegistryBootcamp.org are wide-ranging, and will support communities throughout the process of designing and developing their own registries. You can work through the content step by step, or seek out answers to specific questions. There is no set timeline in which to work through this content: explore at your own pace.

About Registry Bootcamp

Registry Bootcamp is a training program from GA that offers advocates, advocacy organizations, and other community groups the information and strategies needed to launch and operate a successful registry. Whether you are looking for an introduction to registries, a deep dive into a specific topic, or services to support you in running your registry, Registry Bootcamp has something for you!
While GA offers a variety of programs and tools for conducting research, including the GA Registry, the GA Biobank, and the GA IRB, use of these resources is not a pre-requisite for using the Registry Bootcamp resources. The content offered through Registry Bootcamp is relevant to any community seeking to gather their members to collect data and conduct research.
Have a question or feedback you would like to share? Please contact us. Contact us →