Six health professionals and researchers make up the Genetic Alliance IRB. These individuals are not directly involved in any of Genetic Alliance’s approved research and serve solely as objective judges of the potential benefits and harms of proposed projects and studies. The IRB has been formally designated to approve, monitor, and review biomedical and behavioral research involving human beings. The IRB exists to ensure that the appropriate steps are taken to protect the rights and welfare of the people participating in research and studies - while supporting the advocacy community through research review processes without typical, cumbersome systems.
