Genetic Alliance Webinars Schedule

Genetic Alliance Webinars Schedule

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Hot Topics in Genetics and Advocacy
Meet Your Neighbors
Strategies for Success

 

Wednesday, February 10, 2010 12:00pm - 1:00pm ET
Childhood Screening in Public Health
Hot Topics in Genetics and Advocacy

Childhood screening for early identification of numerous health and developmental risks provides a model for coordinated care as it maximizes the potential of the medical home and necessitates parent-provider partnerships. Childhood screening for genetic conditions also offers the opportunity to screen for conditions that may not have been appropriate in the newborn period, but the results of which could be useful in childhood. Throughout this webinar, presenters will discuss the possible distinctions between newborn and childhood screening and touch on the broad spectrum of definitions for "benefit" and "treatment."

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Wednesday, February 24, 2010 12:00pm - 1:00pm ET
Wikis 101: Tips and Tricks for Contributing to WikiAdvocacy and WikiGenetics
Strategies for Success

Launched by Genetic Alliance to fill gaps identified by the network, WikiAdvocacy and WikiGenetics are resources that are rich with the contributions from the broad health community! After a brief introduction to each of the wikis, participants are encouraged to follow along as some basic wiki tips are demonstrated, such as how to create a page, edit a page, and upload a file. Through these mini-tutorials and asking questions, participants will become familiar with wiki technology, so that they can begin sharing their wealth of knowledge related to running advocacy organizations and genetics through these great resources.

Presenters:

Hilary Andreff - Fellow, Genetic Alliance
Alyson Krokosky - Genetic Information Coordinator, Genetic Alliance
Mark Petruniak - Technology Program Assistant, Genetic Alliance

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