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Advocacy, Education & Empowerment

Genetic Alliance and LunaPBC Partnership

Over the course of 2019, the organizations will merge Genetic Alliance's Platform for Engaging Everyone Responsibly (PEER) with LunaDNA to provide individuals and communities with more resources to support health management while maximizing research opportunities.

Luminary Award

We’re so proud of our CEO, Sharon Terry - recipient of the Luminary Award from PMWC. Her recognition for success in inspiring and leading the movement to build systems for individuals to access & share health data is much deserved.

Consumer-Driven and DIY Science

Sharon Terry discusses the scientific, clinical, ethical, and policy issues related to consumer-driven science.


A unique, award-winning technology solution for collecting health data directly from individuals.

Advocacy means more than research conducted with participants at the table. It means that the people are leading the research effort. Our tools, partnerships, and projects build capacity in communities, enable new cross-sector partnerships, and place control in the hands of the people.


Expecting Health is a team of key leaders in health communication and pregnancy and pediatric health, with a strong passion for bridging actionable, evidence-based information with the everyday realities of life for families. We know that education and support needs don’t end at childbirth. Instead, a whole new set of education and support needs emerge.

Genetic Alliance is an innovator in implementing and measuring programs in stakeholder engagement. We believe that diverse stakeholder leadership is imperative for elevating voices; leveraging stories; identifying research questions; improving participation and retention; and ensuring that knowledge makes its way back to people.


Learn about Genetic Alliance’s exciting internship program, with opportunities for Fall, Spring, and Summer!

Stay up-to-date with Genetic Alliance news, opportunities, meetings, and more!

Check out this comprehensive condition resource for patients, clinicians and researchers.

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4301 Connecticut Ave NW, Suite 404, Washington DC 20008-2369 | Tel: 202.966.5557 | Fax: 202.966.8553 | EIN 52-1571905

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