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Advocacy, Education & Empowerment

Precision Medicine Initiative

"This is what Genetic Alliance has been working toward for years.  I am delighted by the President’s recognition of the power of participants in this initiative.  Together with other advocates, citizen scientists, and patients, we are thrilled to roll up our sleeves and get started!" - Sharon Terry

Precision Medicine Initiative

Request for Proposals

Genetic Alliance invites proposals for a registry development project funded by the Robert Wood Johnson Foundation. This project will allow groups (community, organization, collective) to establish a dynamic and granular registry simply and efficiently.

Apply Now to Build a Registry using PEER for your community.

Get to know the Genetic Alliance Programs!

Babys First Test, Genes In Life, Disease InfoSearch, PEER and more are all powered by Genetic Alliance. Together we are committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities.

Genetic Alliance Programs

Intern at Genetic Alliance!

Join the exciting health advocacy community by submitting your application for a summer internship today!

BioTrust holds the space for individuals, families, and communities to participate in translational research.  The revolution in health will only happen in a trust environment with people at the heart of it. BioTrust examines and creates policies, and provides novel tools for participants to actively engage in research.  The BioTrust Ethics Team, together with the Genetic Alliance Institutional Review Board, provides oversight.

With better health as the goal, Genetic Alliance puts genetic and genomic information into context for individuals and families. Our tools increase access to services and provide the information people need, when they need it. From family health history to whole genome sequencing, our combination of accessible, culturally competent print and web resources, multimedia, and health information technologies empower people to make healthy decisions.

Engaged families are informed, educated and have access to information and services when they need them most. If you are planning a family or advocating for your child, Expecting Health meets a critical need in the health delivery landscape. We have tools that lead to more informed decision-making, educate consumers around appropriate testing and public health services, and help individuals navigate the complex health care delivery system.

Highlights

Disease InfoSearch is a resource for patients, clinicians and researchers.

A place to learn about all the ways genetics is a part of your life.

It’s time to take control of our health! Come together to Free The Data.

Find resources on advocacy for accessible communities with Advocacy Atlas!

The Association of Maternal and Child Health Programs is a partner and advocate for state public health leaders and others who work to improve the health of youth and families.

Building online health and wellness communities for patients and caregivers

Learn all you need to know about Newborn Screening.

Stay Up To Date with News, Action Steps, Meetings & More!

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4301 Connecticut Ave NW, Suite 404, Washington DC 20008-2369 | Tel: 202.966.5557 | Fax: 202.966.8553 | EIN 52-1571905

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