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Genetic Alliance is one of the world’s leading nonprofit health advocacy organizations. We engage individuals, families, and communities to transform health. Trying to find information and interventions for disease, searching for health information, and/or trying to find ways to participate in research is difficult.  We create ways to make it easier to find or build solutions in health services and research.

Our network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations. The network is a dynamic and growing open space for shared resources, creative tools, and innovative programs.

Since 1986, Genetic Alliance has defined the intersection of health and genetics. Originally founded as an alliance for support groups, our work has evolved along with the growing health advocacy movement and the rapid advancement of genetic technology. While our roots are in genetics, we recognize that meaningful solutions that improve health must be multidisciplinary. To that end, we apply solutions in health and disease, practice and prevention, and on the local and global level. Through our broad and diverse partnerships, we have created a dynamic network that serves as an open space for sharing valuable resources, creative tools, and innovative programs.

Our core promise is articulateed in our Mandate for Quality Genetic Services.


Genetic Alliance is a 501 (c)(3) not-for-profit organization. Genetic Alliance’s work is supported by a blend of funding from government grants and contracts, industry and corporate support, individual donations, and fees generated by services and events. We continually work to diversify our funding sources. A key part of this diversification plan is to secure strategic, fee-for-service partnerships that leverage our expertise, serve the needs of the field and community, and bring greater financial sustainability to the organization.

The success of Genetic Alliance activities and our mission as a whole depend on the generosity of our supporters. You can make a tax-deductible donation at any time.

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4301 Connecticut Ave NW, Suite 404, Washington DC 20008-2369 | Tel: 202.966.5557 | Fax: 202.966.8553 | EIN 52-1571905

Except where otherwise noted, content on this site is licensed under a Creative Commons Attribution 3.0 License.