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Genetic Alliance Webinars offer information and discussion on a variety of topics, including hot-button issues in genetics and advocacy, public policy, and organizational development. Genetic Alliance presents a new webinar at least once a month. Visit our webinar archive for previous webinar recordings and presentations:

 

Webinar Archive


Upcoming Webinars

Human Genome Editing: Science, Ethics, and Governance

Date: Friday, May 19, 2017
Time: 12:00 - 1:00 pm EDT

The National Academy of Sciences and National Academy of Medicine have just released a new report on human genome editing.

Genome editing is a powerful new tool for making precise alterations to an organism’s genetic material. Recent scientific advances have made genome editing more efficient, precise, and flexible than ever before. These advances have spurred an explosion of interest from around the globe in the possible ways in which genome editing can improve human health. The speed at which these technologies are being developed and applied has led many policymakers and stakeholders to express concern about whether appropriate systems are in place to govern these technologies and how and when the public should be engaged in these decisions.

In Human Genome Editing: Science, Ethics, and Governance, an expert committee considered important questions about the human application of genome editing including: Balancing potential benefits with unintended risks, governing the use of genome editing, incorporating societal values into clinical applications and policy decisions, and respecting the inevitable differences across nations and cultures that will shape how and whether to use these new technologies. This webinar will summarize the findings and recommendations of the committee.

Presenter:
Katherine Bowman, Study Director
Alta Charo, University of Wisconsin-Madison, Co-Chair of the committee
Jeffrey Kahn, Johns Hopkins University, Committee member

Moderator:
Sharon Terry, Genetic Alliance, Committee member

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