Upcoming Events
Webinar Series: What about Privacy and Progress in Whole Genome Sequencing?The Presidential Commission for the Study of Bioethical Issues recently released a report entitled Privacy and Progress in Whole Genome Sequencing. This year-long series will use the report structure as the basis for discussion. We’ll explore each recommendation, look for practical applications, and consider what else might be needed to realize the fruit of whole genome sequencing and respect privacy. |
Webinar Series: Registries for AllRegistries for All (Reg4ALL) is an innovative new registry platform that aims to accelerate research and improve health for all. Reg4ALL users begin by answering simple and engaging questions about their health, and then set specific privacy settings that reflect exactly how confortable they are with sharing that information. Find out how Reg4ALL works – and how to make it work for you – with the Genetic Alliance webinar series.
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Powerful Patient Data: Genomics and Family Health History in Health IT
May 30-31 2013, Salt Lake City, Utah
Family health history and genetic/genomic information face similar barriers to use in patient care. Collection of this information can be sensitive and often impacts a patient's family members. Even when the information is collected, the data is rarely stored in a way that allows it to be used to its full potential. And yet, this information has significant potential for use in screening and diagnosis for an individual and their family. Genetic Alliance and Intermountain Healthcare are planning a summit with the goal of ensuring that this important information can be accessed and activated within the electronic medical record to drive better patient care.
