Genetic Alliance transforms the healthcare system and engages consumers to reclaim their own health. Since 1986, we have built partnerships across diverse fields and disciplines and launched groundbreaking tools and resources. To learn about past projects, visit our Archives & History. Since 2011, our program work has focused on three areas: BioTrust, Genes in Life, and Maternal & Child Health. These three enterprises form the core of our work and mission.
Biomedical research requires participation from individuals, families and communities. The BioTrust enterprise offers a path to solutions. From the applied ethics activities of the BioTrust Ethics Team to dynamic tools such as the Platform for Engaging Everyone Responsibly (PEER) we are catalyzing translational and clinical research and accelerating solutions for human health.
Healthy families are informed, educated and have access to information & services when they need them most. We make that happen. If you are planning a family, or advocating for your child, our Healthy Family Initiative meets a critical need in the health delivery landscape. We’re engaged with you while you plan a family until you are ready to send yours off to college! We have tools that lead to more informed decision-making, educate consumers around appropriate testing and public health services and help individuals navigate the complex health care delivery system. The cornerstone of this enterprise is Baby’s First Test, which houses the nation’s newborn screening educational center for parents and health providers.
The goal? Better health! Genetic Alliance believes patients should be in control of their health and at the center of their care. We provide resources to empower individuals to do just that. Genes in Life increases access to services and provides the information people need, when they need it. From family health history to whole genome sequencing, our combination of accessible, culturally competent print and web resources, multimedia, and health information technologies empower people to make healthy decisions.