Genetic Alliance transforms the healthcare system and engages consumers to reclaim their own health. Since 1986, we have built partnerships across diverse fields and disciplines and launched groundbreaking tools and resources. To learn about past projects, visit our Archives & History. In 2011, we refocused our program work in three areas. The BioTrust, Expecting Health, and Genes in Life enterprises form the core of our work and mission.
Biomedical research requires participation from individuals, families, and communities. The BioTrust enterprise offers a path to solutions. From the applied ethics activities of the BioTrust Ethics Team to dynamic tools such as the Platform for Engaging Everyone Responsibly (PEER), we are catalyzing translational and clinical research and accelerating solutions for human health. Genetic Alliance participates in PCORnet through its Community Engaged Network for All.
Healthy families are informed, educated, and have access to information and services when they need them. We make that happen. Our Healthy Family Initiative meets a critical need in the health delivery landscape. If you are planning a family or advocating for your child, look no further. We will engage you at all stages of family planning, from pre-conception through your child's first day at college! We have tools that lead to more informed decision-making, educate consumers about appropriate testing and public health services, and help individuals navigate the complex healthcare delivery system. The cornerstone of this enterprise is Baby’s First Test, which houses the nation’s newborn screening educational center for parents and health providers.
The goal? Better health! Genetic Alliance believes patients should be in control of their health and at the center of their care. We provide resources to empower individuals to do just that. Genes in Life increases access to services and provides the information people need, when they need it. From family health history to whole genome sequencing, our accessible, culturally competent print and web resources, multimedia, and health information technologies empower people to make healthy decisions.