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Open Access

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Open Access is the idea that all federally-funded scientific research should be made free and open to the public immediately at the time of publication.

Why support Open Access?

Currently, publications from tax-payer funded research are made open and free to the public only after a year’s delay. Genetic Alliance needs your help making federally-funded research free to read as soon as they are published!

  • Open access allows research to return to its original purpose: to spread knowledge and allow that knowledge be built upon.
  • More knowledge leads to better outcomes: researchers and doctors can make decisions based on the latest research.
  • Breakthroughs can come from unexpected places: Open access allows anyone with an internet connection to be a potential contributor to research, instead of just those at wealthy institutions.

What has Genetic Alliance done to support Open Access?

On February 19, 2020, White House Office of Science and Technology Policy (OSTP) opened up a new Request for Information (RFI) on the issue of Public Access to the Results of Federally Funded Research.

  • Genetic Alliance hosted a webinar with Heather Joseph of SPARC to discuss the questions, provide talking points for your potential responses, and walk through the process of submitting an RFI.

Genetic Alliance's Previous Statements on Open Access

Sign-on Letter for a Strong National Open Access Policy, January 13, 2019

Genetic Alliance Supports Patient Access to Laboratory Test Results, November 15, 2011

Sharon Terry Testifies at Public Access Federally-funded Research Hearing, July 29, 2010

Genetic Alliance Speaks at FDA Transparency Task Force Meeting, June 24, 2009

Comments to the National Institutes of Health on Open Access Policy, March 20, 2008

 

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