Abetalipoproteinemia Collaboration Foundation

General Organizational Information
Organization Name: 
Abetalipoproteinemia Collaboration Foundation
Organization Acronym: 
ACF
Year Established: 
2009
Type of organization: 
International Condition(s)-specific organization
Mission Statement: 
To create an international network of those diagnosed with Abetalipoproteinemia (also known as Bassen-Kornzweig disease) and related disorders, as well as their families, treating physicians, and researchers.
Status of organization: 
Unincorporated non-profit
Professional/Medical Board?: 
No
501(c)3 Status?: 
Yes
Paid staff?: 
Yes
Board of Directors?: 
No
Serves the following conditions
Organizational Contact Information
Title: 
Foundation Coordinator
First Name: 
Shelly
Last Name: 
Rudnick
Address: 
PO Box 8293
Cincinnati, 45208
United States
See map: Google Maps
Phone: 
+1 513 557 3808
Email: 
shelly.rudnick@abetalipoproteinemia.org
Website Address: 
http://www.abetalipoproteinemia.org
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Health care professionals
Families of affected individuals
The public
Teachers
Students
Researchers
Other
Range of services include: 
Referrals to research studies
Referrals to matching individuals/families
Peer support
Other
Genetic information
Other
Educational materials include: 
Website
Other
Conferences/workshops for: 
Affected individuals and/or families
Researchers
Professionals
Other
Financial assistance for: 
Other
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