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What is this?
Abetalipoproteinemia
General Organizational Information
Year Established:
1998
Type of organization:
General support or information organization
Mission Statement:
An online support group to help others with abetalipoproteinemia
Professional/Medical Board?:
No
501(c)3 Status?:
No
Paid staff?:
No
Board of Directors?:
No
Serves the following conditions
Organizational Contact Information
First Name:
Ruth
Last Name:
Gold
Address:
Phone:
+1 480 659 0540
Email:
gellergold@cox.net
Resources and Services Provided
Languages spoken:
English
Information provided for:
Other
Range of services include:
Peer support
Other
Chat room
Other
Educational materials include:
Other
Conferences/workshops for:
Other
Financial assistance for:
Other