11q Research and Resource Group

General Organizational Information
Year Established: 
1995
Mission Statement: 
To provide support and organizational efforts for parents of all children with 11th chromosome abnormalities. Through networking, cooperation with the research community, and resulting sharing of information, we will be better able to meet the challenges brought to us as parents, families and friends of 11q children.
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Diseases: 
Chromosome 11
Organizational Contact Information
Title: 
Coordinator
First Name: 
Melanie
Last Name: 
Johnson
Address: 
12333 Gayton Bluffs Lane
Richmond, VA, 23233
Phone: 
+1 804 364 5048
Fax: 
+1 804 828 5383
Email: 
melaniejsj@hotmail.com
Website Address: 
http://www.11qusa.org/index.htm
Resources and Services Provided
Information provided for: 
Other
Range of services include: 
Peer support
Referrals for non-medical services
Other
Telephone helpline
Other
Educational materials include: 
Other
Conferences/workshops for: 
Researchers
Professionals
Other
Financial assistance for: 
Other
Research activities include: 
Registry of affected individuals
Linking researchers and families
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info@geneticalliance.org