Printed materials available in:
Information provided for:
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Media
Students
Researchers
Other
Range of services include:
Referrals to local chapter or group
Referrals to research studies
Professional counseling
Medical referrals
Peer support
Grief counseling
Referrals for non-medical services
Financial referrals
Crisis intervention
Other
Awareness programs
Telephone helpline
Genetic information
Legal advice
Advocacy
Other
Educational materials include:
Fact sheet(s)
Journal articles on condition
Pamphlet(s)
Journal
Lending library
Booklet(s)
Research updates
Newsletter
Bibliography
Resource guide
Website
Student materials
Other
Conferences/workshops for:
Affected individuals and/or families
Public
Other
Financial assistance for: