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Meet Your Neighbors
Archive
Meet Your Neighbors webinar series helps participants learn what others are doing and how they can collaborate to achieve success. This series of conference calls is presented by organizations in the genetics community that represent some of the world's most innovative diagnostic technology companies, clinical laboratories, researchers, physicians, venture capitalists, and parent advocacy groups.
May 14, 2008:
National Library of Medicine
The May 14 Webinar will introduce you to some of the patient-friendly resources at the National Library of Medicine (NLM). Many of these resources were developed with the help of subject matter experts, including Genetic Alliance members, to help you through your medical odyssey. Speakers May Cheh and Lisa Forman will show you how to access these materials, how to customize them to your own needs and how to ensure that your interests are kept updated and accurate. We look forward to e-meeting you!
Presenters:
Lisa Forman Neall - National Library of Medicine
May Cheh - National Library of Medicine
Download session materials:
Genetics Home Reference [pdf]
Hi, Neighbor [pdf] |
April 2, 2008:
American Society of Human Genetics (ASHG)
This webinar presents a brief introduction to the American Society of Human Genetics (ASHG), the primary professional membership organization for over 8,000 human genetics experts worldwide. Speakers Joann Boughman and Kristen Long provide an overview of ASHG’s primary goals and initiatives. They also discuss the Society’s key genetics education and public outreach programs, as well as other major initiatives that aim to advance scientific research and support advocacy efforts related to human genetics.
Presenters:
Joann Boughman - Executive Vice-President, ASHG
Kristen Long - Communications Manager, ASHG
Download session materials:
Listen to recording:
.wma
ASHG Presentation[pdf]
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February 6, 2008:
National Coalition for Health Professional Education in Genetics (NCHPEG)
An introduction to the National Coalition for Health Professional Education in Genetics (NCHPEG). Speaker Kate Reed discusses the development of educational programs to promote health professional knowledge and use of genetics in the clinic.
Presenter:
Kate Reed - Project Director, National Coalition for Health Professional Education in Genetics
Download session materials:
Listen to recording: .mp3, .wma
Power point presentation [pdf] |
May 30th, 2007:
American Clinical Laboratory Association
During this webinar featuring the American Clinical Laboratory Association, participants learned more about ACLA's membership and mission. They also discussed key issues surrounding genetic testing. How do we maintain and improve reimbursement for new tests? How do we regulate tests to protect public safety without stifling innovation? Most importantly how can ACLA, advocacy groups, and other health organizations work closely together on issues we have in common?
Presenter:
Alan Mertz - President, American Clinical Lab Association
Download session materials:American Clinical Laboratory Association [PowerPoint]
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September 19, 2007:
Genetic Alliance BioBank
May 16th, 2007:
College of American Pathologists
During this webinar with the College of American Pathologists (CAP), participants learned more about CAP's Laboratory Accreditation Program. Speaker Gail Vance discussed the College's efforts to assure quality genetic testing and CAP's recommendations for the continued supervision of quality testing which allows innovation in laboratory testing to continue.
Presenter:
Gail Vance - Board Member, College of American Pathologists
Download session materials:
College of American Pathologists [PowerPoint] |
April 10th, 2006:
Introduction to Collaboration, Education, and Test Translation (CETT) Program for Rare Diseases
During this webinar participants examined the CETT program, a pilot program established by the Office of Rare Diseases to promote new genetic testing development and better understanding of individual rare diseases.
Presenters:
Andy Faucett, Centers for Disease Control and Prevention (CDC)
Bonnie Pagon, GeneTests/GeneClinics.
Download session materials:
CETT: Collaboration, Education and Test Translation Program [PowerPoint] |
April 4th, 2007:
The Coalition for 21st Century Medicine
For schedule of upcoming Genetic Alliance webinars, visit http://www.geneticalliance.org/strategies
For tools and information related to these sessions and others, visit the Genetic Alliance Resource Repository. |
