Sign Up For Our Mailing Lists!
This email list is targeted for leaders of disease-specific organizations and their active members. Messages distributed through this list include information about events of interest, relevant legislative efforts, and weekly tips. View archived emails from this list here.
Genetic Alliance Network Announcements
Periodically, Genetic Alliance will alert you to important action items, announcements, and deadlines, including Genetic Alliance-specific material as well as information from the genetics, health, and advocacy communities. Some weeks there will be no emails; other weeks one or more might be sent to the list. View archived emails from this list here.
Newborn Screening Updates
Newborn Screening Today: A bimonthly newsletter highlighting newborn screening initiatives, current newborn screening news, and new opportunities to engage in the newborn screening dialogue. View archived emails from this list here.
Registry and Biorepository Bulletin
Genetic Alliance BioBank sends a monthly update to keep you informed of developments in the field of registries and biorepositories. This newsletter highlights relevant funding announcements, training opportunities, scientific meetings, and recent updates from the literature. View archived emails from this list here.
This weekly update features news about upcoming events, spotlights organizations, and highlights legislation before Congress. Email email@example.com to submit your event to the Weekly Bulletin. View current and archived weekly bulletins here.
Community Forum Discussion
Being a part of the Genetic Alliance network gives you access to valuable online meeting spaces that provide an opportunity to discuss as a virtual community. Subscribe to this discussion group here.
Family Advocates Network
Join in conversations around genetic services and what is needed to improve the healthcare experience for individuals with genetic conditions and their families. Subscribe to this discussion group here.