Meet Your Neighbors webinar series helps participants learn what others are doing and how they can collaborate to achieve success. This series of conference calls is presented by organizations in the genetics community that represent some of the world's most innovative diagnostic technology companies, clinical laboratories, researchers, physicians, venture capitalists, and parent advocacy groups.
2008
December 10, 2008:
What is New at HRSA Maternal and Child Health Bureau?
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The Maternal and Child Health Bureau Genetic Services Branch looks at how public agencies help translate advancements in genetic Services and genomics research into resources and services. Listen to this webinar to hear about the new and ongoing programs initiated by HRSA to deliver information to the public and to integrate genetics into the larger scope of health. activities and plans as they strive to increase access to quality genetic services across the lifespan.
Presenters:
Penny Kyler - Public Health Analyst, Department of Health and Human Services
Download session materials:
Genetic Services Branch: Who we are and what we do [pdf]
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October 22, 2008:
Heartland Regional Genetics and Newborn Screening Collaborative
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The Heartland Regional Genetics and Newborn Screening Collaborative is a network of genetics and newborn screening providers, advocates and other stakeholders from Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, and South Dakota. The Heartland Collaborative is one of seven Genetic Service and Newborn Screening Regional Collaborative Groups awarded federal grants in 2004 to develop regional approaches to improve the distribution of genetic resources. Members of the Heartland Collaborative promote and improve health through quality medical genetics services, clinical laboratory services, professional and public education, genetics research, and public policy. Lori Williamson, Project's Co-Director and Manager describes some of their activities and plans as they strive to increase access to quality genetic services across the lifespan.
Presenters:
Lori Williamson - Project Co-Director and Manager, Heartland Regional Genetics and Newborn Screening Collaborative<
Download session materials:
Heartland Regional Genetics and Newborn Screening Collaborative [pdf]
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October 1, 2008:
Intermountain Healthcare and the Clinical Genetics Institute
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Intermountain Healthcare is a not-for-profit health system based in Salt Lake City, Utah. The system includes 21 hospitals, numerous clinics, a health plan, and a physician group of more than 500 practitioners serving the health care needs of Utah and southeastern Idaho residents. In 2005, Intermountain launched the Clinical Genetics Institute (CGI) to serve as the designated entity that directs policymaking and service delivery related to genetics/genomics within Intermountain Healthcare. The CGI is working to address the rapid and dynamic changes anticipated with the addition of genomic information to the existing repertoire of clinical data used in the practice of medicine. Janet and Grant provide an overview of the initiatives of the CGI.
Presenters:
Janet L. Williams - Genetic Counselor, Clinical Genetics Institute
Grand Wood -Senior Informaticist, Clinical Genetics Institute<
Download session materials:
Get to Know Your Neighbors: Intermountain Healthcare Clinical Genetics Institute (CGI) [pdf]
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June 11, 2008:
National Society of Genetic Counselors (NSGC)
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This webinar presents a brief introduction to the National Society of Genetic Counselors (NSGC), the primary professional membership organization for over 2,300 genetic counselors. Speakers Angela Trepanier, Steven Keiles and Meghan Carey provide an overview of NSGC's primary goals and initiatives and discuss NSGC's genetic education, outreach and advocacy efforts.
Presenters:
Angela Trepanier - President, National Society of Genetic Counselors (NSGC)
Steven Keiles -President Elect, National Society of Genetic Counselors (NSGC)
Meghan Carey - Executive Director, National Society of Genetic Counselors (NSGC)
Download session materials:
National Society of Genetic Counselors [pdf]
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May 14, 2008:
National Library of Medicine
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This webinar introduces participants to some of the patient-friendly resources at the National Library of Medicine (NLM). Many of these resources were developed with the help of subject matter experts, including Genetic Alliance members, to help you through your medical odyssey. Speakers May Cheh and Lisa Forman show you how to access these materials, how to customize them to your own needs and how to ensure that your interests are kept updated and accurate.
Presenters:
Lisa Forman Neall - National Library of Medicine
May Cheh - National Library of Medicine
Download session materials:
Listen to recording: .mp3
Genetics Home Reference [pdf]
Hi, Neighbor [pdf] |
April 2, 2008:
American Society of Human Genetics (ASHG)
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This webinar presents a brief introduction to the American Society of Human Genetics (ASHG), the primary professional membership organization for over 8,000 human genetics experts worldwide. Speakers Joann Boughman and Kristen Long provide an overview of ASHG's primary goals and initiatives. They also discuss the Society's key genetics education and public outreach programs, as well as other major initiatives that aim to advance scientific research and support advocacy efforts related to human genetics.
Presenters:
Joann Boughman - Executive Vice-President, ASHG
Kristen Long - Communications Manager, ASHG
Download session materials:
Listen to recording: .wma
ASHG Presentation[pdf] |
May 30, 2007:
American Clinical Laboratory Association
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During this webinar featuring the American Clinical Laboratory Association, participants learned more about ACLA's membership and mission. They also discussed key issues surrounding genetic testing. How do we maintain and improve reimbursement for new tests? How do we regulate tests to protect public safety without stifling innovation? Most importantly how can ACLA, advocacy groups, and other health organizations work closely together on issues we have in common?
Presenter:
Alan Mertz - President, American Clinical Lab Association
Download session materials:
American Clinical Laboratory Association [PowerPoint] |
May 16, 2007:
College of American Pathologists
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During this webinar with the College of American Pathologists (CAP), participants learned more about CAP's Laboratory Accreditation Program. Speaker Gail Vance discussed the College's efforts to assure quality genetic testing and CAP's recommendations for the continued supervision of quality testing which allows innovation in laboratory testing to continue.
Presenter:
Gail Vance - Board Member, College of American Pathologists
Download session materials:
College of American Pathologists [PowerPoint] |
For schedule of upcoming Genetic Alliance webinars, visit http://www.geneticalliance.org/webinars
For tools and information related to these sessions and others, visit the Genetic Alliance Resource Repository.
