Organizations: X
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Xeroderma Pigmentosum Family Support Group
(updated on 12/02/2009)
The Xeroderma Pigmentosum (XP) Family Support group exists to improve the quality of life persons of those persons with XP and other diagnosed UV light conditions
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Xeroderma Pigmentosum Society, Inc.
(updated on 12/02/2009)
The XP Society mission includes education, protection, and research for a cure for patients with XP and all severe life-threatening UV sensitivity disorders.
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XLH Network, Inc.
(updated on 03/09/2010)
The XLH Network’s mission is to facilitate research, education, and advocacy for XLH by creating resources and a community for affected families, educating and supporting physicians and other providers of medical care, and fostering the search for a cure.
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XLP Research Trust
(updated on 11/24/2009)
The XLP Research Trust exists to (1) Promote and fund research into the cause, management, symptoms and cure for XLP (2) Provide a point of contact and support for those families affected by XLP (3) Raise the awareness of XLP amongst the medical profession and the general public
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XXYY Project
(updated on 12/02/2009)
To build the capacity of parents and service providers to help males with XXYY Syndrome to lead purposeful, productive lives.