Organizations: L
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LAM Foundation
(updated on 04/27/2010)
The LAM Foundation urgently seeks a treatment-and ultimately a cure for LAM through advocacy and the funding of promising research. We are dedicated to serving the scientific, medical and patient communities by offering information, resources and a worldwide network of hope and support.
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Les Turner ALS Foundation
(updated on 11/24/2009)
To support medical research into the cause, treatment and cure of ALS; clinical and support services for patients and families living; and dissemination of information about ALS.
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Let's Face It USA
(updated on 12/02/2009)
Let's Face It USA is a non medical support and information network for patients, families and professionals.
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Little People of America, Inc.
(updated on 12/02/2009)
Little People of America, Inc. (LPA), will assist dwarfs with their physical and developmental concerns resulting from short stature. By providing medical, environmental, educational, vocational, and parental guidance, short-statured individuals and their families may enhance their lives and lifestyles with minimal limitations. Through peer support and personal example, our members will be supportive of all those who reach out to LPA. Lastly, by networking with national and international growth-related and genetic-support groups, LPA will enhance knowledge and support of short-statured individuals.
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Living with Trisomy 13 - Miracles in Progress
(updated on 03/08/2010)
LWT13 - An international group of families who have had a child diagnosed with Trisomy 13 – Patau Syndrome. Whether they are: on the prenatal journey...have a child living presently...or have a child who has died and still grieving. This is an amazing site where families through their own grief and pain, reach out to help others on this very unique journey with Trisomy 13. All these families have lived and are living with a Trisomy 13 diagnosis and the reality of how it changes lives.
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Loeys Dietz Syndrome Foundation
(updated on 08/24/2010)
The Loeys-Dietz Syndrome Foundation (LDSF) is a 501(c)3 nonprofit organization dedicated to bringing greater awareness to Loeys-Dietz syndrome (LDS) by encouraging education, fostering research and providing support for those impacted by LDS.
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London Diabetes and Lipid Centre
(updated on 11/24/2009)
London Diabetes works to ensure that each individual patient controls their diabetes rather than letting diabetes control their lives through providing accessible and high quality health care.
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Lowe Syndrome Association
(updated on 11/24/2009)
Our mission is to provide information on Lowe syndrome, foster communication among families, promote a better understanding of Lowe syndrome, and to encourage and support medical research.
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Lymphangiomatosis & Gorham's Disease Alliance
(updated on 03/09/2010)
Our mission is to improve the care of patients through our patient support programs, and by raising funds to support research that will identify effective treatments and cures. We strive to educate patients and families, and the medical and scientific communities, by providing important, relevant information, and by being the leading advocate for the worldwide member-community.
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Lymphatic Research Foundation
(updated on 06/21/2010)
Our mission is to promote and support lymphatic research as a field, and to find improved treatments and a cure for lymphatic diseases, lymphedema, and related disorders.
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Lynch Syndome International
(updated on 04/05/2010)
The primary mission of Lynch Syndrome International (LSI) is to serve our global communities by focusing on providing support for individuals afflicted with Lynch syndrome, creating public awareness of the syndrome, educating members of the general public and health care professionals and providing support for Lynch syndrome research endeavors.
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Lysosomal Diseases New Zealand
(updated on 04/23/2010)
Our mission is to both improve contacts, information and support for affected people and their families, and to support research into the causes, potential treatments, and ways to improve clinical care for individuals affected with lysosomal diseases.