Organizations: J
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Jacob's Cure
(updated on 06/07/2010)
Jacob's Cure is dedicated to raising the funds necessary to support research aimed at treating and/or curing Canavan disease, a fatal, genetic, neurological disorder that affects children at birth.
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Jeffrey Modell Foundation
(updated on 11/24/2009)
The Jeffrey Modell Foundation (JMF), a non-profit organization, was established by Vicki and Fred Modell in memory of their son, Jeffrey, who died at the age of 15 from complications of Primary Immunodeficiency (PI). The Foundation's mission is dedicated to early and precise diagnosis, meaningful treatments and ultimately, cures for PI. JMF focuses it's efforts in research, physician education, patient support, public awareness and advocacy.
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Jeune Syndrome Information and Support Network
(updated on 11/24/2009)
The Jeune Syndrome Info/Support Network provides information and support for families, medical professionals or anyone with an interest in Jeune Syndrome. The mission of our network is linking families to share common medical experiences, information about the syndrome and to offer support.
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Jewish Genetic Disease Consortium
(updated on 12/02/2009)
The JGDC was created as a means by which a number of smaller, individual organizations could join together to heighten awareness of Jewish genetic diseases with a strong and unified voice. Oour strength lies in our ability to pull together resources and experience to best reach our target audience - medical professionals, rabbis, and the Ashkenazi population at large. United, we are better equipped to educate this audience about the existence of carrier screenig which will ultimately prevent the birth of affected children.
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JMML Foundation, The
(updated on 12/02/2009)
The Mission of the JMML Foundation is to cure Juvenile Myelomonocytic Leukemia (JMML) and to improve the quality of life of JMML patients and families through research, education, advocacy, and charity.
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Joshua Frase Foundation
(updated on 11/24/2009)
The Joshua Frase Foundation is dedicated to supporting ongoing medical research for myotubular myopathy and other related congenital myopathies.
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Joubert Syndrome & Related Disorders Foundation
(updated on 06/18/2010)
The Joubert Syndrome & Related Disorders Foundation is dedicated to educating families, physicians, and their support teams as well as increasing public awareness of Joubert syndrome and related disorders (JSRDs).