Organizations: I
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I'm Too Young For This!
(updated on 11/24/2009)
The I'm Too Young For This! Cancer Foundation For Young Adults (i[2]y) is a global support community for young adults affected by cancer who get busy living and rock on. Our mission is to improve quality of life by providing 'one-stop' access to hard to find resources, peer support and social networks. We use music and the arts to make it hip to be a survivor and talk about stupid cancer by advocating on behalf of over 200 young adult support resources and 1M+* survivors aged 15-39 who are currently living with and beyond cancer worldwide.
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Idaho Alpha-1 Community Outreach
(updated on 11/24/2009)
Idaho Alpha-1 Community Outreach offers support, education and information to Idaho Alpha-1 affected individuals.
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IDEAS (IsoDicentric 15 Exchange Advocacy & Support)
(updated on 11/24/2009)
IDEAS provides family support and promotes awareness, research and targeted treatments for chromosome 15q duplication syndrome. IDEAS offers help and hope for chromosome 15q duplications.
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Illinois Neurofibromatosis, Inc.
(updated on 11/24/2009)
Our mission includes -- providing educational and support programs to individuals and families with Neurofibromatosis, educating the general public and health care professional about Neurofibromatosis, raising funds to support Neurofibromatosis programs, and supporting Neurofibromatosis research through funding and legislation.
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Immune Deficiency Foundation
(updated on 12/02/2009)
Our mission is to improve the diagnosis and treatment of patients with primary immune deficiency diseases through research, education and advocacy.
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In Need Of Diagnosis, Inc.
(updated on 12/02/2009)
Our mission is to provide help and support for persons distressed with illnesses that have eluded diagnosis; to identify and encourage the implementation of protocols that will facilitate quicker and more accurate diagnosis.
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Incontinentia Pigmenti International Foundation
(updated on 02/01/2010)
IPIF is a voluntary non-profit organization guided by a Scientific Advisory Council. IPIF consists of patients, physicians, educators, parents, relatives and volunteers who are striving to take leadership in supporting research, education, and funding. IPIF is a source of reliable information and support for patients and families in the United States and worldwide. Its mission is to encourage and support research on IP, and to provide family support and education.
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Indiana State Department of Health
(updated on 11/24/2009)
The Indiana State Department of Health supports Indiana's economic prosperity and quality of life by promoting, protecting and providing for the health of Hoosiers in their communities.
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Inflammatory Breast Cancer Research Foundation
(updated on 11/24/2009)
Our mission is to assist scientists and researchers in their quest to determine the definitive causes of inflammatory breast cancer. The Inflammatory Breast Cancer Research Foundation seeks to assist them in their work so effective and meaningful detection and diagnosis, prevention and treatment can be pursued and achieved.
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Institute on Disability and Human Development
(updated on 11/24/2009)
The Institute on Disability and Human Development (IDHD), a University Center for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD) is dedicated to promoting the independence, productivity and inclusion of people with disabilities into all aspects of society.
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Instituto Canguru - Support Group for Inborn Errors of Metabolism and Disorders
(updated on 01/31/2010)
The Instituto Canguru - Support Group for Inborn Errors of Metabolism and Disorders is a non - profit civil society organization of public interest - whose main mission is to disseminate knowledge of inherited metabolic disorders among health professionals and society in general, proposing initiatives that facilitate the access of patients to information, diagnostic investigation and necessary treatments.
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International 22q 1 1.2 Deletion Syndrome Foundation
(updated on 11/24/2009)
The mission of the International 22q11.2 Deletion Syndrome Foundation, Inc. is to improve the quality of life for affected individuals and their families by sustaining clinical care, education, research, public awareness, support and advocacy.
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International Children's Anophthalmia Network
(updated on 11/24/2009)
The International Children's Anophthalmia & Micropthalmia Network (ican), a voluntary not-for-profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anophthalmia (eyes that are abnormally small, completely absent, or consist only of vestigial portions).
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International Costello Syndrome Support Group
(updated on 11/24/2009)
Providing support and information for families affected by Costello syndrome.
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International Cystinuria Foundation Incorporated
(updated on 11/24/2009)
The Mission of the International Cystinuria Foundation is to strengthen, educate, and further the general well being of the cystinuric community. We aim to support a growing and strong group of patients, families, professionals, and friends by providing educational and health related resources to affected individuals worldwide. We also aim to promote knowledge of cystinuria within the research and medical communities in order to reduce kidney destruction, renal impairment, and subsequent health, vocational, and economic impact.
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International Dyslexia Association
(updated on 11/24/2009)
The International Dyslexia Association (IDA) is a non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them. Throughout our rich history, our goal has been to provide the most comprehensive forum for parents, educators, and researchers to share their experiences, methods, and knowledge.
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International Essential Tremor Foundation
(updated on 12/02/2009)
A worldwide organization providing global educational information, serices, and support to those affected by essential tremor (ET) and health care providers, while promoting and funding ET research.
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International FOP Association
(updated on 12/02/2009)
The IFOPA is an organization for people who have FOP and their families to share information, support medical research & to educate physicians & other interested individuals about FOP.
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International Foundation for Functional Gastrointestinal Disorders, Inc.
(updated on 12/02/2009)
We are a registered nonprofit education and research organization. Our mission is to inform, assist and support people affected by gastrointestinal (GI) and motility disorders.
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International Mosaic Down Syndrome Association
(updated on 11/24/2009)
IMDSA is designed to provide support, information, research and to increase awareness in the medical, educational and public communities throughout the world.
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International Myotonic Dystrophy Organization
(updated on 11/24/2009)
The International Myotonic Dystrophy Organization helps bring awareness, education, resources and hope to people touched by Myotonic Dystrophy.
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International Organization of Glutaric Aciduria
(updated on 11/24/2009)
The International Organization of Glutaric Aciduria (IOGA) is an international, voluntary, and non-profit organization dedicated to promoting early detection, preventing neurological damage, and assisting in the treatment and rehabilitation of those affected by Glutaric Aciduria Type I (GA1) and other neurological diseases.
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International Registry of Werner Syndrome
(updated on 11/24/2009)
We invite individuals with symptoms of Werner syndrome to send blood samples and tissue samples to the University of Washington for enrollment in our ongoing research on Werner syndrome and other aging conditions.
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International Rett Syndrome Foundation
(updated on 11/24/2009)
The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.
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International Scleroderma Network
(updated on 11/24/2009)
Stellar worldwide research, support, education and awareness for scleroderma and related illnesses.
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International Society for Mannosidosis & Related Diseases
(updated on 11/24/2009)
ISMRD is the leading advocate for families worldwide affected by a Glycoprotein & Related Storage Disease. Through partnerships built with medicine, science and industry, we seek to detect and cure these diseases, and to provide a network of support and information.
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International Society of Nurses in Genetics, Inc.
(updated on 12/02/2009)
ISONG, the International Society of Nurses in Genetics, is a global nursing specialty organization dedicated to fostering the scientific and professional growth of nurses in human genetics and genomics worldwide. The ISONG vision is: Caring for people's genetic and genomic health.
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International WAGR Syndrome Association
(updated on 01/31/2010)
Our mission is to promote international knowledge and awareness of WAGR syndrome and its complications and treatments, to stimulate research and to reach out to those affected by WAGR syndrome in an effort to improve their lives.
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Intestinal Multiple Polyposis and Colorectal Cancer Foundation
(updated on 11/24/2009)
The Intestinal Multiple Polyposis and Colorectal Cancer Foundation supports individuals affected with polyposis and colorectal cancer.
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Iowa Department of Public Health
(updated on 11/24/2009)
Promoting and Protecting the Health of Iowans
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Iowa Federation of Families for Children's Mental Health
(updated on 11/24/2009)
To provide needed support to families who have children with emotional, mental, social and/or mental difficulties. This mission will be accomplished by empowering families through information dissemination, referral services, mentoring, advocacy, training, and legislative collaboration
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Iron Disorders Institute
(updated on 12/02/2009)
Reducing pain, suffering and unnecessary death due to disorders of iron through awareness, education and research.
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Iron Overload Diseases Association, Inc.
(updated on 11/24/2009)
Iron Overload Disease Association's mission is to lead the search for the millions of Americans and other nationals who have undiagnosed iron overload, to promote adequate treatment, and to prevent the severe health problems and avoidable deaths that results from neglect of iron overload.
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It's My Heart, Inc.
(updated on 11/24/2009)
It's My Heartﾒs mission is to provide support, spread awareness, educate and advocate for those affected by congenital heart defects by creating alliances with fellow families, hospitals, support groups, and the community.