Organizations: H

  • Haemochromatosis Society Australia, Inc. (updated on 11/24/2009)
    We were established to educate about genetic haemochromatosis.
  • Hailey-Hailey Disease Society (updated on 11/24/2009)
    Our primary mission is the dissemination of free, correct and useful information and support for HHD patients and the health care community. We support this website and forum and manage the Yahoo Group, TalkHHD.
  • Hearing Loss Association of America (updated on 11/24/2009)
    The mission of HLAA is to open the world of communication to people with hearing loss by providing information, education, support and advocacy.
  • HemiHypertrophy Support Group (updated on 11/24/2009)
    To provide information and support to families affected by Hemihypertrophy.
  • Hemophilia Federation of America (updated on 02/11/2010)
    The Hemophilia Federation of America is a national non-profit organization that assists and advocates for the bleeding disorders community.
  • Hepatitis C Outreach Project (updated on 11/24/2009)
    Our mission is to inspire, support and enhance community efforts toward prevention, awareness, education, and treatment of Hepatitis C and promote organ donation. We are committed to working with any organization, agency, or professional individual to develop partnerships resulting in quality programming and good public decision making based on accurate information regarding Hepatitis C. We offer our resources and services freely in a spirit of goodwill and generosity, ever mindful of our purpose
  • Hereditary Colorectal Cancer Registry (updated on 11/24/2009)
    The registry allows clinicians and researchers to utilize information for research on the causes of colon and rectal cancer. The registry also provides services to families, community health professionals, and the general public, including educational materials and programs on hereditary colorectal cancer syndromes, cancer genetics, and current research.
  • Hereditary Disease Foundation (updated on 12/02/2009)
    The Hereditary Disease Foundation is a non-profit, basic-science organization dedicated to the cure of genetic disease, with a focus on Huntington disease.
  • Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) Family Alliance (updated on 11/24/2009)
    Families, Friends, Physicians, & Researchers working together to improve diagnosis, treatment, & quality of life for people affected by HLRCC
  • Hereditary Neuropathy Foundation (updated on 05/26/2010)
    HNF promotes and supports both clinical and primary CMT research. We are also actively committed to increasing awareness of the disease through all available media outlets, including print, radio and television as well as fundraising programs. While our members give a face to CMT, HNF provides a strong, organizational voice to those living with CMT all over the world.
  • Hereditary Spherocytosis (HS) Support Group (updated on 01/31/2010)
    Our goal is to assist families of HS patients and to promote effective HS research. Additionally, we want to establish an HS Foundation.
  • Hermansky-Pudlak Syndrome Network, Inc. (updated on 12/02/2009)
    Our mission is to gather and provide information, to promote awareness and research and to offer support to our members.
  • Heterotaxy Foundation (updated on 03/15/2010)
    The Heterotaxy Foundation is a non-profit organization created to raise funds for research and promote awareness of a rare disease called Heterotaxy Syndrome.
  • HHT Foundation International (updated on 11/24/2009)
    Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.
  • Hide And Seek Foundation for Lysosomal Disease (updated on 02/08/2010)
    We are a foundation dedicated to raising awareness and funds for research to treat, cure and prevent Lysosomal Disease as a whole.
  • Hidradenitis Suppurativa Foundation, Inc. (updated on 12/02/2009)
    The mission of the Hidradentitis Suppurativa Foundation, Inc. (HSF) is to foster and encourage worldwide research by developing and supporting an interdisciplinary family of scientists and physicians devoted to studying the molecular and cellular basis of Hidradentitis Suppurativa (HS), in order to develop and deliver more effective forms of treatment and preventative measures for those with this common, debilitating, and eminently chronic disease.
  • Hidradenitis Suppurativa USA, Inc. (updated on 11/24/2009)
    We are dedicated to bringing about greater awareness and understanding of Hidradenitis Suppurativa, a disease widely spread but largely unknown, within the medical profession and in the public at large; to encourage teaching in the schools; to train health practitioners to help identify, diagnose, and treat HS; and to foster scientific research.
  • Hirschsprung's & Motility Disorders Support Network (updated on 11/24/2009)
    Hirschsprung's & Motility Disorders Support Network is an organization of families encouraging families.
  • Histiocytosis Association of America (updated on 02/01/2010)
    The Histiocytosis Association of America is dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research leading to better treatments and a cure.
  • Hope for Two...The Pregnant with Cancer Network (updated on 04/23/2010)
    Hope for Two...The Pregnant with Cancer Network is an organization dedicated to providing women diagnosed with cancer while pregnant with information, support and hope. We connect women who are pregnant with cancer with other women who have been pregnant with the same type of cancer.
  • Human Growth Foundation (updated on 11/24/2009)
    The Human Growth Foundation helps children and adults with disorders related to growth or growth-hormone through education, research, support and advocacy.
  • Hunter's Hope Foundation (updated on 12/02/2009)
    The Foundation's mission is to increase public awareness of Krabbe Disease and other leukodystrophies, as well as to increase the likelihood of early detection and treatment. The Foundationメs goal is to fund research efforts to identify new treatments, therapies and a cure for Krabbe Disease.
  • Huntington's Disease Society of America (updated on 06/14/2010)
    We are a national non-profit voluntary health agency dedicated to finding a cure for Huntingtonメs Disease. We provide vital support, information and educational services to improve the lives of those affected by HD, offer resources and guidance for HD families through our national network of volunteer-based chapters and affiliates as well as through our HDSA Centers of Excellence for Family Services and promote and support research to find a cure for HD.
  • Huntington's Disease Society of America - MA Chapter (updated on 11/24/2009)
    The New England HDSA office provides education, advocacy, support, and care to people with Huntington's Disease, their families and to professional caregivers in NH, ME, MA, and RI, funds research efforts and provides an extensive education outreach program.
  • Huntington's Disease Society of America - Michigan Chapter (updated on 05/09/2010)
    The Michigan Chapter works locally to fulfill the mission of The Huntington's Disease Society of America by promoting and supporting research to find a cure for HD, helping people and families affected by the disease, and educating the public and health care professionals about HD.
  • Hydrocephalus Association (updated on 12/02/2009)
    The Hydrocephalus Association provides support, education and advocacy for families, individuals and professionals dealing with the complex issues of hydrocephlaus.
  • Hydrocephalus Support Group, Inc. (updated on 11/24/2009)
    To support, educate and inform anyone dealing with hydrocephalus
  • Hypermobility & Fibromyalgia Website & Mailing List (updated on 11/24/2009)
    The objective is to increase awareness about the connection between Hypermobility (HMS) and Fibromyalgia (FMS), and their respectively related conditions. In addition, to provide places where people with both of these conditions can meet and exchange information and support, allowing them hopefully to better cope with their illnesses on a daily basis.
  • Hypertrophic Cardiomyopathy Association (updated on 12/02/2009)
    Our mission is to provide access to information on all treatment options, life style issues and peer support to patients and families. We also provide access to information on research and advances in HCM research.
  • Hypomelanosis of Ito Family Support Network (updated on 11/24/2009)
    The Family Support Network's aim is to enrich the lives of families and children affected by Hypomelanosis of Ito by facilitating and encouraging communication and linking families together, and by being a focal point offering verbal and written support.
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