Organizations: C
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C3: Colorectal Cancer Coalition
(updated on 12/02/2009)
C3: Colorectal Cancer Coalition is a national, nonpartisan organization whose mission is to win the fight against colorectal cancer through research, empowerment and access. C3 pushes for research to improve screening, diagnosis, and treatment of colorectal cancer; for policy decisions that make the most effective colon and rectal cancer prevention and treatment available to all; and for increased awareness that colorectal cancer is preventable, treatable, and beatable.
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CADASIL Together We Have Hope
(updated on 12/02/2009)
CADASIL Together We Have Hope is devoted to promoting awareness, support and research for this rare genetic disease including patients, families, friends and healthcare providers. We create a communication network among families and identifies sources of medical care and social services.
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Canadian Fabry Association
(updated on 12/02/2009)
To undertake public and private education and awareness, dissemination and publication of information about Fabry disease; initiate, encourage and support research and investigation into its causes and treatment, and to provide funds in respect thereof; to promote better understanding, management and treatment; and to arrange for, coordinate and increase the facilities available for diagnosis, consultation and treatment of those suffering from Fabry disease.
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Canadian Fanconi Anemia Research Fund
(updated on 11/24/2009)
Fanconi Canada is a registered charity that funds research in Canada into an effective treatment and, ultimately, a cure for Fanconi anemia and serves as a support network for affected Canadian families.
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Canadian Multiple Endocrine Neoplasia Society Inc
(updated on 11/24/2009)
Our mission is to provide information for affected families and to promote awareness of this rare genetic disease in the medical community.
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Canadian Organization for Rare Disorders
(updated on 11/24/2009)
Through an educational and information support network, CORD is committed to the enhancement of the lives of all persons affected by rare disorders.
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Canadian Society for Mucopolysaccharide and Related Diseases Inc.
(updated on 11/24/2009)
The Canadian MPS Society is committed to providing support to families affected with MPS and related diseases, educating medical professionals and the general public about MPS and related diseases, and raising funds for research so that one day cures can be found for all types of MPS and related diseases.
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Canavan Research Illinois
(updated on 11/24/2009)
Canavan Research Illinois (also known as Canavan Disease Research) is a nonprofit corporation and 501(c)(3) public charity based in Illinois, established in April 2000 to meet a critical need to support medical research to treat, cure, and improve the quality of lives of all children battling Canavan disease, a rare fatal genetic neurological disorder.
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Candlelighters Childhood Cancer Foundation
(updated on 11/24/2009)
Our mission is to provide information, support, and awareness for children and adolescents with cancer and their families, to advocate for their needs, and to support research so every child survives and leads a long and healthy life.
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Carcinoid Cancer Foundation, Inc.
(updated on 11/24/2009)
The Carcinoid Cancer Foundationﾙ is a non-profit organization founded in 1968. The mission of this foundation is to encourage and support research, increase awareness, and to educate the general public and healthcare professionals regarding carcinoid cancer and related neuroendocrine tumors, with the ultimate goal of finding a cure.
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Cardiac Arrhythmias Research and Education Foundation, Inc.
(updated on 11/24/2009)
To provide funding for research and to increase professional and public awareness of unexpected sudden cardiac death due to acquired heart disease and inherited rhythm disorders.
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Cardio-Facio-Cutaneous International
(updated on 12/02/2009)
CFC International is forging a path to improve lives through family support, research and education.
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CARES Foundation, Inc.
(updated on 12/02/2009)
CARES Foundation, Inc. is a 501(c)(3) non-profit membership and advocacy organization committed to improving the lives of families and patients affected by Congenital Adrenal Hyperplasia (CAH) through proactively advancing research for a cure, educating the public and healthcare providers about all forms of CAH, advocating for universal newborn screening, and providing support services and resources vital to the CAH community worldwide.
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Caring for Carcinoid Foundation
(updated on 11/24/2009)
We are dedicated to discovering a cure for carcinoid cancer.
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Caring Voice Coalition,Inc,
(updated on 12/02/2009)
Caring Voice Coalition is dedicated to building relationships with charitable organizations founded to help individuals and families affected by serious chronic disorders and diseases.
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Carol Ann Foundation & International Morquio Organization
(updated on 11/24/2009)
The Carol Ann Foundation is a 501(c)3 non-profit organization dedicated to seeking out people who have Morquio Type A in order to provide a mutual aid network; act as an advocate between patients
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Cavernoma Alliance UK
(updated on 12/02/2009)
Our mission is to ensure that everyone with cavernous angiomas and their families have access to clear information which provides information about the illness; To provide information, through our website, about others affected by cavernous angiomas and to provide mutual support; To increase awareness of cavernous angiomas so that those affected by the condition receive understanding and support.
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Celiac Sprue Association
(updated on 12/02/2009)
CSA is a member-based non-profit organization, dedicated to helping individuals with celiac disease and dermatitis worldwide through education, research and support.
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Center for Loss in Multiple Birth
(updated on 11/24/2009)
Our mission is to provide parent-to-parent support for all of us who have experienced the death of one or more of our twins or higher multiple birth children at any time from conception through birth, infancy and early childhood, as well as to assist extended families, caregivers, twins and multiples organizations and others who are seeking to understand and support the needs of parents with a multiple birth loss.
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Centronuclear Myopathy Project
(updated on 11/24/2009)
The Centronuclear Myopathy Project is making a worldwide difference in Centronuclear Myopathy by: collaborating with other organizations, raising awareness, providing education, and supporting research.
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CHADD (Children & Adults with Attention-Deficit Hyperactivity Disorder)
(updated on 11/24/2009)
CHADD improves the lives of people affected by attention deficit/hyperactivity disorder (AD/HD).
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Charcot-Marie-Tooth Association
(updated on 11/24/2009)
To generate the resources to find a cure, to create awareness and to improve the quality of life for those affected by Charcot-Marie-Tooth.
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CHASER, Inc.
(updated on 11/24/2009)
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Chiari & Syringomyelia Foundation
(updated on 11/24/2009)
To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation, syringomyelia and related CSF (cerebrospinal fluid) disorders.
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Chicago Center for Jewish Genetic Disorders
(updated on 11/24/2009)
The Center is dedicated to gathering and disseminating knowledge about Jewish genetic disorders. Its mission is to educate and serve health care professionals, clergy and the Jewish community.
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Child & Adolescent Bipolar Foundation
(updated on 11/24/2009)
The Child & Adolescent Bipolar Foundation educates families, professionals, and the public about pediatric bipolar disorder; connects families with resources and support; advocates for and empowers affected families; and supports research on pediatric bipolar disorder and its cure.
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Children's Alopecia Project, Inc.
(updated on 12/02/2009)
We help children living with hair loss due to all forms of Alopecia. We raise awareness and build self-esteem so the kids can become stronger teens and more productive adults and the advocates of tomorrow.
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Children's Cardiomyopathy Foundation
(updated on 12/02/2009)
Our mission is to accelerate the search for a cure by stimulating and supporting promising research on pediatric cardiomyopathy, by educating and assisting physicians and patients on the complexities of the disease, and by increasing awareness and advocacy on behalf of affected children and their families.
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Children's Craniofacial Association
(updated on 11/24/2009)
Childrenﾒs Craniofacial Association (CCA) is dedicated to improving the quality of life for people with facial differences and their families by addressing the medical, financial, psychological, emotional, and educational concerns relating to craniofacial conditions.
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Children's PKU Network
(updated on 11/24/2009)
CPN is a non-profit organization dedicated to maintaining an agenda of public awareness, education and direct assistance through a variety of programs, to help people with PKU and other metabolic disorders reach their full potential.
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Children's Tumor Foundation
(updated on 11/24/2009)
The Children's Tumor Foundation is dedicated to improving the health and well being of individuals and families affected by neurofibromatoses (NF).
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Chordoma Foundation
(updated on 11/24/2009)
Our mission is to improve the lives of patients with chordoma by rapidly delivering effective treatments, and ultimately a cure.
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Chromosome 22 Central
(updated on 01/27/2010)
Our mission is to provide support and information to families or individuals affected by disorders of chromosome 22.
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Chromosome 9p- Network
(updated on 12/02/2009)
We strive to promote the health and welfare of affected families of persons with 9p- Syndrome. We do this through networking, conferences, newsletters and support of research.
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Chromosome Disorder Outreach, Inc.
(updated on 11/24/2009)
Our mission is to provide support to parents of children born with rare chromosome disorders, to gather & disseminate information, & to promote research & a positive community understanding of these disorders.
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Chronic Granulomatous Disease Association, Inc.
(updated on 11/24/2009)
CGDA is an international network of support and information for persons with chronic granulomatous disease, their families and physicians. The organization networks patients with similar CGD-related illnesses or infecting organisms, provides an international registry of patients, and assists with referrals to physicians and clinical studies.
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Citizens for Quality Sickle Cell Care, Inc.
(updated on 12/02/2009)
To ensure the availability and accessibility of quality and comprehensive medical care and support services for children and adults in Northern Connecticut with Sickle Cell Disease and related di
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Citizens United for Research in Epilepsy
(updated on 11/24/2009)
Citizens United for Research in Epilepsy (CURE) is a nonprofit organization dedicated to finding a cure for epilepsy by raising funds for research and by increasing awareness of the prevalence and devastation of this disease.
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Claire Altman Heine Foundation, Inc.
(updated on 11/24/2009)
While other organizations are working hard to find a treatment and/or cure, the Claire Altman Heine Foundation mission is to use its funding to identify carriers of spinal muscular atrophy (SMA), support population-based SMA carrier testing, raise awareness of SMA and educate the public and medical communities about SMA.
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CLIMB - Children Living with Inherited Metabolic Diseases
(updated on 11/24/2009)
Climb is committed to fighting metabolic diseases through research, awareness and support. We are the UK's only dedicated organisation to provide advice, information and support on all metabolic diseases to children, young adults, families, carers and professionals.
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CMT United Kingdom
(updated on 11/24/2009)
CMT United Kingdom is working to support those affected by Charcot-Marie-Tooth Disease, also known as Hereditary Motor and Sensory Neuropathy.
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CMTC
(updated on 12/02/2009)
Our mission is to increase the well-being of people who suffer from CMTC, and to stimulate and develop activities that could increase this well-being. We also aim to stimulate scientific research regarding the causes and treatment of CMTC.
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Coalition for Heritable Disorders of Connective Tissue
(updated on 11/24/2009)
The goals of CHDCT are to bring about greater awareness and understanding of heritable disorders of connective tissue in medical professional and in the public at large; to encourage teaching in the schools, to train health practitioners to help identity, diagnose, and treat various heritable connective tissue disorders; and, to foster research.
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Coalition for Pulmonary Fibrosis
(updated on 12/02/2009)
The Coalition for Pulmonary Fibrosis (CPF) is a 501(c)(3) nonprofit organization, founded in 2001 to accelerate research efforts leading to a cure for idiopathic pulmonary fibrosis (IPF), while educating, supporting, and advocating for the community of patients, families, and medical professionals fighting this disease.
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Coffin-Lowry Syndrome Foundation
(updated on 11/24/2009)
The purpose of CLSF is to provide a clearinghouse for information on Coffin-Lowry Syndrome (CLS), and to provide families affected by CLS a general forum in which to exchange information, ideas and advice.
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College of American Pathologists
(updated on 12/02/2009)
The College of American Pathologists, the principal organization of board-certified pathologists, serves and represents the interests of patients, pathologists, and the public by fostering excellence in the practice of pathology and laboratory medicine.
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Colorectal Cancer Network
(updated on 11/24/2009)
The Colorectal Cancer Network is survivors and their loved ones standing up to say "Not one more person should die from this cancer!" Our plan iincludes: A support network so that no one goes through this alone anymore; aggressive awareness, screening, and early detection programs; and legislative actions.
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Compassionate Friends
(updated on 11/24/2009)
The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.
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Contact a Family
(updated on 11/24/2009)
Contact a Family's vision is that all families with disabled children are empowered to live the lives they choose to live, and achieve their full potential, for themselves, for the communities they live in and for society.
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Conversations!
(updated on 11/24/2009)
The mission of Conversations! is to provide information to people who are diagnosed with gynecologic cancers, their families, and caregivers.