Organizations: B
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Barth Syndrome Foundation
(updated on 07/29/2010)
The Barth Syndrome Foundation's mission is "Saving lives through education, advances in treatment, and finding a cure for Barth syndrome.
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Basal Cell Carcinoma Nevus Syndrome Life Support Network
(updated on 04/28/2010)
BCCNS Life Support Network 's mission is to provide education and support to those patients affected with the manifestations of BCCNS, and the professionals who care for them.
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Batten Disease Support and Research Association
(updated on 04/18/2010)
Our mission is to be an international support and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as Batten disease.
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Beckwith-Wiedemann Children's Foundation
(updated on 11/24/2009)
The Beckwith-Wiedemann Children's Foundation is a non-profit organization dedicated to increasing the quality of life for those affected by this rare, 1:14,000 birth disorder.
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Benign Essential Blepharospasm Research Foundation, Inc.
(updated on 04/16/2010)
The Mission of the Benign Essential Blepharospasm Research Foundation, Inc. is to fund and promote medical research in the search for the cause and cure of blepharospasm, Meige, and other related disorders of the facial musculature, to provide support, education and referrals to persons with these disorders, and to disseminate information and serve as an authoritative resource to the medical community and the general public.
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Billy Barty Foundation, Inc.
(updated on 11/24/2009)
The Billy Barty Foundation's mission is to guarantee an acceptable and improved quality of life for Little People through education, employment, accessibility and athletic programs. The Foundation strives to assist people of short stature to live more independently and productively, and is committed to develop unique and necessary accommodations and services.
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Biotinidase Deficiency Family Support Group
(updated on 11/24/2009)
Our mission is to establish a forum to exchange information about biotinidase deficiency among affected individuals and with medical professionals and to advocate for the inclusion of biotinidase testing in all newborn screening programs.
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Birt-Hogg-Dube Family Alliance
(updated on 06/14/2010)
The Birt-Hogg-Dube (BHD) Family Alliance was formed as a source of information and contacts for those who are affected by or interested in BHD.
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Birth Defect Research for Children, Inc.
(updated on 12/02/2009)
Birth Defect Research for Children provides free information about birth defects and developmental disabilities. We also sponsor a parent matching program and the National Birth Defect Registry, a research project that collects data for studies on causes of birth defects.
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BOKS vzw
(updated on 11/24/2009)
Improvement of live quality and quantity for people with metabolic disorders. Give our children more life for their years and more years to live.
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Breast Cancer Network of Strengthﾙ
(updated on 11/24/2009)
The mission of Breast Cancer Network of Strengthﾙ is to ensure, through information, empowerment and peer support, that no one faces breast cancer alone.
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Breast Cancer Options
(updated on 11/24/2009)
Our mission is to educate breast cancer patients about effective treatment options, to advocate for and support informed patient choice and to promote public awareness regarding cancer risk reduction.
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Brown-Vialetto-Van Laere International
(updated on 05/27/2010)
BVVL International is the first web-based resource tool where physicians, researchers, and families interested in learning more about Brown-Vialetto-Van Laere syndrome.