Genetic Alliance is proud to provide a range of resources and services that benefit both individuals and organizations. We welcome and encourage your involvement: listen to webinars, create and edit entries in WikiGenetics and WikiAdvocacy, participate in the Advocates Partnership Program, add your organization to Disease InfoSearch, and more.

Organization Resources:

Phone and in-person guidance – Genetic Alliance uses a step-by-step plan for establishing programs, which range form an informal support system to an incorporated nonprofit organization, for individuals and families with a specific condition. Contact Amelia Chappelle for more information: achappelle@geneticalliance.org.

Listserv Hosting – Genetic Alliance can create a unique, private listserv for an organization or group for an annual fee of $100 per list. Advocacy organization leaders are responsible for moderating their own lists and managing individual members.

Website Development and Hosting – Genetic Alliance’s website program allows advocates to use an easy to operate system for displaying content, creating calendars and bulletin boards, etc.