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Community Engaged Network for All

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In the News:

DC Outreach, Inc. and PXE International Launch Patient Registry Networks on November 19, 2014

Hepatitis Foundation International Patient Registry Network (HepPRN) Launched on October 21, 2014

National Gaucher Foundation and Joubert Syndrome and Related Disorders Foundation, two of the eleven disease advocacy organizations in the network, launched research registries on September 15, 2014


What is the Community Engaged Network for All (CENA)?

What conditions are covered in CENA?

What organizations are involved in CENA?

What CENA means for individuals, families and communities?

What about individual preferences with regard to health information sharing?

What CENA means for Researchers?

How other organizations, institutions and groups can participate in CENA?

Information about the ten organizations involved in CENA


Follow the @CENAProject on Twitter for more information and announcements.

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