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NETS - Updated Natural History

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What is an updated natural history and why is it important in drug development?

An updated natural history is a study that adds new information to an existing natural history study for a disease group. Often, natural history studies are updated when new information is available, such as how a therapeutic treatment behaves in different patient populations. Natural history studies can help researchers gain an understanding of the etiology, range of manifestations, and progression of rare diseases.

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