Genetic Testing
Why support the expansion of coverage for Genetic Testing?
- Having an accurate diagnosis can lead to changes in treatment and management of the condition, prevent additional unnecessary testing, and help families find a support structure via other families and organizations.
- Expanding Medicaid to cover Whole Genome Sequencing in all states would provide all families with an actionable, accurate diagnosis, regardless of income.
- Increased genetic testing accelerates the development of effective treatments, as more data is collected on the condition.
What has Genetic Alliance done to support the expansion of coverage for Genetic Testing?
Genetic Alliance wrote to Congress supporting the “Ending the Diagnostic Odyssey Act of 2019.”
How can YOU support the expansion of coverage for Genetic Testing?
Write a letter to your Congressperson supporting the “Ending the Diagnostic Odyssey Act of 2019.” today!
Genetic Alliance's Previous Statements on Genetic Testing
Organizations Sign on to Support bill HR.4144, the "Ending the Diagnostic Odyssey Act of 2019.", October 1, 2019
Sharon Terry Asks Organizations to Sign on to support bill H.R.4144, the “Ending the Diagnostic Odyssey Act.”, September 17, 2019
Genetic Alliance Response to FDA LDT Guidance, February 2, 2015
Beast of Burden? Comments on the NIH Genetic Testing Registry, March 2012
Sharon Terry Testifies about Increasing Oversight of Laboratory Developed Tests (LDTs), July 28, 2010
Genetic Alliance Asks FDA for Oversight of Advanced Diagnostic Tests and Proposed IVDMIA Guidance, February 2, 2010
Comments to the Secretary's Advisory Committee on Genetics, Health, and Society on Oversight of Genetic Tests, February 11, 2008