Genetic Alliance, a non-profit organization founded in 1986, is a leader in deploying high tech and high touch programs for individuals, families, and communities to transform health systems by being responsive to the real needs of people in their quest for health.
I wanted to offer ASHG’s congratulations and thanks for your powerful story on the PBS NewsHour “Brief but Spectacular” series! Of course, the human genetics, policy and patient advocacy communities know well your decades-long commitment and leadership on research innovation and access…Thank you again!
PBS Newshour
RegistryBootcamp.org offers advocates, advocacy organizations, and other community groups the information and strategies needed to launch and manage an impactful registry. Whether you are looking for an introduction to registries, a deep dive into a specific sub-topic, or a practical guide, this site has something for you.
Genetic Alliance helps organizations and communities cultivate a supportive environment and do the research their community needs.
Take time to cultivate, culture, support, and growth.
Create effective research protocols for your next IRB submission.
Build a successful biobank for your community.