Art of Listening | Art of Reporting | Art of Advocacy | Art of Novel Partnership | Art of Industry Partnership | Founder’s Service Award

Art of Listening:
The Art of Listening Award honors a caring, receptive health professional in the lives of individuals and families living with genetic conditions.

Past Recipients:

2009 Frank Lehmann-Horn, MD, PhD
Professor
Institute of Applied Physiology, Ulm University, Germany

2008 Joann N. Bodurtha, MD MPH
Professor
Virginia Commonwealth University, VA

2007 Ronald Zuker, MD
Surgeon
The Hospital for Sick Kids, Toronto, CN

2006 Edwin Kolodny, MD
Vice-Chairman of the Executive Committee of the Medical Board of the Tisch Hospital
Co-Chairman of the Executive Advisory Committee of the General Clinical Research Center
Director of the Neurology Service
At NYU Med Center

2006 Alan Rabson, MD
Deputy Director
National Cancer Institute, NIH

2005 Luba Djurdjinovic, MS, CGC
Program Director
Ferre Inc. 

2005 Robert I. White, Jr., MD
Professor of Diagnostic Radiology
Director of Yale Vascular Malformation Center

2004 Stephen Groft
Director
Office of Rare Diseases, NIH

2003 Susan Hayflick, MD and Richard Kelley, MD
Department of Molecular and Medical Genetics
Oregon Health and Science University

2001 Lawrence M. Nelson, MD
Head of Gynecologic Endocrinology Unit, Investigator, Section of Women's Health Research, Developmental Endocrinology Branch
NIH

1999 Patricia Ann Gibson, MSSW
Assoc. Director, Comprehensive Epilepsy Program
Director, Epilepsy Information Service
Wake Forest University School of Medicine

1998 William Gahl, MD
Clinical Director
National Human Genome Research Institute

1996 Frederick S. Kaplan, MD
Chief, Division of Molecular Orthopedic Medicine, Department of Orthopedic Surgery
Penn Orthopedic Institute

1993 Randi Kramer Fox, MS

1991 Elsa Reich, MS, CGC
Professor of Pediatrics, NYU Med Center
NYE Pediatrics Genetics Association

1990 John Carey, MD
University of Utah, Primary Children’s Medical Center, Shriner’s
Editor-in-Chief - American Journal of Medical Genetics

Art of Reporting:
The Art of Reporting Award acknowledges a media professional whose reporting contributes to public awareness and understanding about genetic advancements or advocacy organizations and their impact on real people’s lives.

Past Recipients:

2009 Gautam Naik
Staff Writer
Wall Street Journal

2007 Amy Marcus
Staff Writer
Wall Street Journal

2006 Paula Zahn
CNN News Anchor

2005 Michael Waldholz
News Editor, Health and Science Desk
Wall Street Journal

2004 Elizabeth Weill
Freelance Writer

2003 Sara Solovitch
Medical Writer, Office of News and Communications
Lucile Packard Children’s Hospital, Stanford University

2001 Michael Ruane
Staff Writer, Washington Post

1999 Ellen Licking
Writer, Business Week

1998 Tom O'Neal

1996 Kathleen Kennedy

1993 Brian T. Meehan
Education Reporter, The Oregonian

Art of Advocacy:
The Art of Advocacy Award pays tribute to a visionary advocate who advances research, information, and/or support services to benefit both organizations and health.

Past Recipients:

2009 Joseph D. McInerney, MS
Executive Director
National Coalition for Health Professional Education in Genetics

2009 Carolina Hinestrosa (awarded posthumously)
Nationa Breast Cancer Coalition

2008 Clare Dunsford, PhD
Associate Dean
Boston College

2007 Abbey Meyers
Founder
National Organization for Rare Disorders

2006 Priscilla Ciccariello
National Marfan Foundation
Coalition for Heritable Disorders of Connective Tissue

2005 Elda Railey
Co-Founder
Research Advocacy Network

2004 Nancy Wexler
President
Hereditary Research Foundation

2003 Patricia Barr (awarded posthumously)
Board Member
National Breast Cancer Coalition

2001 John Forman
Trustee
Lysosomal Diseases New Zealand

2001 Augusto Odone
President, the Myelin Project
Inventor, Lorenzo's Oil

Art of Novel Partnership Award:
The Art of Novel Partnership Award promotes collaboration that models systems transformation. The partnership includes individuals, families, and communities from various stakeholder groups: disease-specific organizations, healthcare professionals, community-based organizations, academia, industry, government, laboratories, and others. The partnership demonstrates willingness to create open space for shared resources that ultimately lead to better health for all—through accelerated research and development, innovative community engagement, technological savvy, and more.

2010 The New Jersey Consortium of Care for Children & Youth with Special Healthcare Needs & Their Families

• Statewide Parent Advocacy Network (SPAN)
• American Academy of Pediatrics-New Jersey Chapter/New Jersey Pediatric Council on Research and Education
• The Arc of New Jersey Mainstreaming Medical Care  
• Boggs Center-University Center of Excellence on Developmental Disabilities, Robert Wood Johnson Medical School
• Family Support Center of New Jersey
• New Jersey Department of Children and Families
• New Jersey Department of Health and Senior Services
• New Jersey Department of Human Services
• Visiting Nurse Association of Central Jersey

Art of Industry Partnership:
The Art of Industry Partnership Award honors a for-profit biotechnology, pharmaceutical, or genetics company whose track record models the benefits of creative partnerships between consumer advocates and industry to advance understanding and treatment of genetic conditions, disorders, and diseases.

Past Recipients:

2009 Talecris Biotherapeutics
Biopharmaceutical Company

2008 PTC Therapeutics, Inc.
Biopharmaceutical Company

2007 Affymetrix
Biotechnology Company

2006 Baxter
Healthcare Group

2005 GeneDX
Genetic Testing Laboratory

2004 Genzyme Corporation
Biotechnology Company

2003 Pfizer, Inc.
Pharmaceutical Company

Founder’s Service: The Founder’s Service Award is a new award in 2008. It recognizes an individual who has given deeply, consistently, and over a long period to Genetic Alliance.

Past Recipients:

2008 Jannine Cody, PhD
President
Chromosome 18 Registry

Winners were honored at the annual conference awards banquet.