Genetic Alliance Annual Conference Awards

Art of Listening | Art of Reporting | Art of Advocacy | Art of Novel Partnership | Art of Industry Partnership | Founder’s Service Award
Art of Listening:
The Art of Listening Award honors a caring, receptive health professional in the lives of individuals and families living with genetic conditions.
Past Recipients:
2009 Frank Lehmann-Horn, MD, PhD
Professor
Institute of Applied Physiology, Ulm University, Germany2008 Joann N. Bodurtha, MD MPH
Professor
Virginia Commonwealth University, VA2007 Ronald Zuker, MD
Surgeon
The Hospital for Sick Kids, Toronto, CN2006 Edwin Kolodny, MD
Vice-Chairman of the Executive Committee of the Medical Board of the Tisch Hospital
Co-Chairman of the Executive Advisory Committee of the General Clinical Research Center
Director of the Neurology Service
At NYU Med Center2006 Alan Rabson, MD
Deputy Director
National Cancer Institute, NIH2005 Luba Djurdjinovic, MS, CGC
Program Director
Ferre Inc.2005 Robert I. White, Jr., MD
Professor of Diagnostic Radiology
Director of Yale Vascular Malformation Center2004 Stephen Groft
Director
Office of Rare Diseases, NIH2003 Susan Hayflick, MD and Richard Kelley, MD
Department of Molecular and Medical Genetics
Oregon Health and Science University2001 Lawrence M. Nelson, MD
Head of Gynecologic Endocrinology Unit, Investigator, Section of Women's Health Research, Developmental Endocrinology Branch
NIH1999 Patricia Ann Gibson, MSSW
Assoc. Director, Comprehensive Epilepsy Program
Director, Epilepsy Information Service
Wake Forest University School of Medicine1998 William Gahl, MD
Clinical Director
National Human Genome Research Institute1996 Frederick S. Kaplan, MD
Chief, Division of Molecular Orthopedic Medicine, Department of Orthopedic Surgery
Penn Orthopedic Institute1993 Randi Kramer Fox, MS
1991 Elsa Reich, MS, CGC
Professor of Pediatrics, NYU Med Center
NYE Pediatrics Genetics Association1990 John Carey, MD
University of Utah, Primary Children’s Medical Center, Shriner’s
Editor-in-Chief - American Journal of Medical Genetics
Art of Reporting:
The Art of Reporting Award acknowledges a media professional whose reporting contributes to public awareness and understanding about genetic advancements or advocacy organizations and their impact on real people’s lives.
Past Recipients:
2009 Gautam Naik
Staff Writer
Wall Street Journal2007 Amy Marcus
Staff Writer
Wall Street Journal2006 Paula Zahn
CNN News Anchor2005 Michael Waldholz
News Editor, Health and Science Desk
Wall Street Journal2004 Elizabeth Weill
Freelance Writer2003 Sara Solovitch
Medical Writer, Office of News and Communications
Lucile Packard Children’s Hospital, Stanford University2001 Michael Ruane
Staff Writer, Washington Post1999 Ellen Licking
Writer, Business Week1998 Tom O'Neal
1996 Kathleen Kennedy
1993 Brian T. Meehan
Education Reporter, The Oregonian
Art of Advocacy:
The Art of Advocacy Award pays tribute to a visionary advocate who advances research, information, and/or support services to benefit both organizations and health.
Past Recipients:
2009 Joseph D. McInerney, MS
Executive Director
National Coalition for Health Professional Education in Genetics2009 Carolina Hinestrosa (awarded posthumously)
Nationa Breast Cancer Coalition2008 Clare Dunsford, PhD
Associate Dean
Boston College2007 Abbey Meyers
Founder
National Organization for Rare Disorders2006 Priscilla Ciccariello
National Marfan Foundation
Coalition for Heritable Disorders of Connective Tissue2005 Elda Railey
Co-Founder
Research Advocacy Network2004 Nancy Wexler
President
Hereditary Research Foundation2003 Patricia Barr (awarded posthumously)
Board Member
National Breast Cancer Coalition2001 John Forman
Trustee
Lysosomal Diseases New Zealand2001 Augusto Odone
President, the Myelin Project
Inventor, Lorenzo's Oil
Art of Novel Partnership Award:
The Art of Novel Partnership Award promotes collaboration that models systems transformation. The partnership includes individuals, families, and communities from various stakeholder groups: disease-specific organizations, healthcare professionals, community-based organizations, academia, industry, government, laboratories, and others. The partnership demonstrates willingness to create open space for shared resources that ultimately lead to better health for all—through accelerated research and development, innovative community engagement, technological savvy, and more.
- Statewide Parent Advocacy Network (SPAN)
- American Academy of Pediatrics-New Jersey Chapter/New Jersey Pediatric Council on Research and Education
- The Arc of New Jersey Mainstreaming Medical Care
- Boggs Center-University Center of Excellence on Developmental Disabilities, Robert Wood Johnson Medical School
- Family Support Center of New Jersey
- New Jersey Department of Children and Families
- New Jersey Department of Health and Senior Services
- New Jersey Department of Human Services
- Visiting Nurse Association of Central Jersey
Art of Industry Partnership:
The Art of Industry Partnership Award honors a for-profit biotechnology, pharmaceutical, or genetics company whose track record models the benefits of creative partnerships between consumer advocates and industry to advance understanding and treatment of genetic conditions, disorders, and diseases.
Past Recipients:
2009 Talecris Biotherapeutics
Biopharmaceutical Company2008 PTC Therapeutics, Inc.
Biopharmaceutical Company2007 Affymetrix
Biotechnology Company2006 Baxter
Healthcare Group2005 GeneDX
Genetic Testing Laboratory2004 Genzyme Corporation
Biotechnology Company2003 Pfizer, Inc.
Pharmaceutical Company
Founder’s Service: The Founder’s Service Award is a new award in 2008. It recognizes an individual who has given deeply, consistently, and over a long period to Genetic Alliance.
Past Recipients:
2008 Jannine Cody, PhD
President
Chromosome 18 Registry
Winners were honored at the annual conference awards banquet.