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Assistant Director of Policy and Advocacy

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Classification: Professional, part-time employment (50% FTE)
Benefits: Paid vacation, health and holidays, generous health insurance, long-term disability, life insurance, transportation deduction, and employee-contributed/employer match 403b plan (pro-rated to 50%)
Location: 4301 Connecticut Avenue NW, Suite 404, Washington, DC 20008
Salary Range: $55,000-$65,000 (will be pro-rated to 50% of FTE)
Genetic Alliance is a nonprofit health advocacy organization committed to engaging individuals, families, and communities to transform health. We give people power to influence the manner in which research is conducted and healthcare is delivered. To that end, we create tools and technologies that give communities and citizen scientists the ability to design and lead research. We believe strategic partnerships that put families in the driver seat in local, national, and international settings are critical to meet our goals.
Genetic Alliance seeks an individual with expertise in health policy in the regulatory (FDA, CMS) and legislative realm for a part-time position (US Congress). Assistant Director of Policy and Advocacy will help Genetic Alliance pursue our policy priorities. An understanding of genetics and genomics issues and technologies is highly desirable. The individual will work with senior Genetic Alliance staff to craft position statements and strategies, analyze policies and congressional bills and will report directly to the CEO.


Primary Responsibilities:

  • Assist the CEO and Chief Strategy Officer in coordinating policy related activities.
  • Maintain an understanding of the nuances of policy issues, sharing that information with Genetic Alliance staff and others.
  • Develop and execute public policy and advocacy educational efforts, which include but are not limited to preparing letters, testimony, and grassroots materials to support legislative and regulatory efforts.
  • Represent Genetic Alliance on public policy issues before a variety of external audiences, including legislators and legislative staff, agency staff and other regulatory parties, and other industry-related groups representing manufacturers, consumers, other professional organizations, and coalition partners.
  • Develop and manage communications with key audiences, including by writing articles and using online member forums.
  • Work with disease advocacy organizations to clearly articulate policy issues.
  • Monitor and report on legislative and regulatory activity related to specific bills.
  • Manage other special projects and duties as assigned.


  • At least five years professional experience in health policy
  • At least three years recent experience working with staff on Capitol Hill
  • Sound judgment and decision making skills
  • The ability to explain complex ideas in a simple way
  • Strategic and critical thinker with the ability to focus on diverse internal and external stakeholders
  • Ability to communicate effectively, both orally and in writing
  • Demonstrated awareness of laws, regulations, and policies that govern health: genetics, genomics a plus
  • A self-starter who is well-organized and capable of managing multiple projects simultaneously and independently
  • Ability to work efficiently and adapt to rapidly evolving climates with limited oversight
  • Must have exceptional research, analytical, writing, and editing skills
  • Strong project management skills
  • A demonstrated commitment to meeting a high bar and a history of getting things done even in the face of obstacles
  • Dynamic comprehension skills with a keen ability to analyze, summarize, draw conclusions, and problem solve
  • Have a sophisticated understanding of policy-making processes, including state legislative and regulatory processes, and political dynamics
  • Bachelor's degree required, advanced degree encouraged; comparable professional experience will be considered.

How to Apply:

Interested applicants should send a resume, cover letter, writing sample(s) and references to: Tetyana Murza,

No Phone Calls Please
Start Date: ASAP

Please note that only those individuals whose qualifications match the current needs of the organization will be considered applicants and will receive responses from Genetic Alliance.

Genetic Alliance provides a competitive compensation and benefits package.

Genetic Alliance is an equal opportunity employer.


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    4301 Connecticut Ave NW, Suite 404, Washington DC 20008-2369 | Tel: 202.966.5557 | Fax: 202.966.8553 | EIN 52-1571905

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